TW: this will not be a positive post..and that’s okay sometimes. As I go back over my manuscript to add more important detail and information, I find myself going back to those times: Relentless weeks of a child screaming at me that this is My Fault. The waking during the night in a panic, soaked... Continue Reading →
It's not just you. When I first read about the Caregiver Burden Index in relation to PANDAS/PANS families, I was relieved. I harbored a lot of guilt inside feeling the way I did, the heavy blanket of depression and apathy that I started to pull over me after years into the fight. The 'score' is... Continue Reading →
Did your child suddenly start behaving strangely? Are they anxious about things that they weren't before? How about school- are they regressing? Have you found yourself Googling symptoms and wondering what happened to your child? You might want to think back and note if they were recently sick. The internet is full of the diagnostic... Continue Reading →
