I was recently reminded that while dealing with this disorder, you are never 'cured'. You are in remission, healthy now, or stable. This was exemplified by a recent minor flare after a 3-year streak. Support looks differently from family to family, depending on their triggers, severity, resources and more. For us, immediate support looked like... Continue Reading →
The previous post touched on some of the parenting changes that helped move our dynamic into a slightly better place while stuck in flares before PANS completely wiped out our family. If you don't know, we experienced more of a snowball effect and things slowly got worse until we were just barely at crisis levels... Continue Reading →
Back when our PANDAS was a mystery, an unknown infiltration into my child's brain, changing our lives slowly and surely, we were told to alter our parenting practices. While I hated this advice, it did cause me to take a step back and think about how I can help manage some of the difficulties we... Continue Reading →
I started journaling when my trenches were just dips in the mud. It started as my son's food diary and notes of medications, doctor visits and symptoms so I could be prepared. I had no idea how important those things were until I needed them as our journey got more complex and heavier. As things... Continue Reading →
I'm not a doctor or a scientist. I'm just a parent who, after having my concerns ignored by medical professionals for over five years, went on a pursuit of knowledge myself. I will always try to steer clear of information that is not available from reliable and trustworthy sources. I will always do my best... Continue Reading →
