TW: this will not be a positive post..and that’s okay sometimes. As I go back over my manuscript to add more important detail and information, I find myself going back to those times: Relentless weeks of a child screaming at me that this is My Fault. The waking during the night in a panic, soaked... Continue Reading →
Daily writing promptWhat’s something most people don’t understand?View all responses There's a lot that people don't understand about PANDAS and PANS in general, but there are complexities around parenting these kids (and others with similar and overlapping qualities/disorders/illnesses) that others just don't quite understand. There is an inability to be carefree, to let your hair... Continue Reading →
I was recently reminded that while dealing with this disorder, you are never 'cured'. You are in remission, healthy now, or stable. This was exemplified by a recent minor flare after a 3-year streak. Support looks differently from family to family, depending on their triggers, severity, resources and more. For us, immediate support looked like... Continue Reading →
The first story submission from Kristin: On June 26 at 1:00 p.m., our lives changed in the blink of an eye, literally. It was that sudden, which later would be the key to where we are now. That morning Judd woke up his usual self, pumped for his first baseball tournament. He played ball at... Continue Reading →
When my daughter handed me the urine sample cup and it was pure black, I panicked. There was nothing in my brain, it all emptied. We were in the pediatrician's office for the second time after she'd had some kind of illness that involved minor vomiting and a two-day fever but 2 weeks later, could... Continue Reading →
