Back when our PANDAS was a mystery, an unknown infiltration into my child's brain, changing our lives slowly and surely, we were told to alter our parenting practices. While I hated this advice, it did cause me to take a step back and think about how I can help manage some of the difficulties we... Continue Reading →
The first story submission from Kristin: On June 26 at 1:00 p.m., our lives changed in the blink of an eye, literally. It was that sudden, which later would be the key to where we are now. That morning Judd woke up his usual self, pumped for his first baseball tournament. He played ball at... Continue Reading →
I started journaling when my trenches were just dips in the mud. It started as my son's food diary and notes of medications, doctor visits and symptoms so I could be prepared. I had no idea how important those things were until I needed them as our journey got more complex and heavier. As things... Continue Reading →
When my daughter handed me the urine sample cup and it was pure black, I panicked. There was nothing in my brain, it all emptied. We were in the pediatrician's office for the second time after she'd had some kind of illness that involved minor vomiting and a two-day fever but 2 weeks later, could... Continue Reading →
The lions, tigers and bears of the PANS/PANDAS world would include Strep, Mycoplasma and Lyme. There are tons of other triggers, but these tend to be some of the biggest offenders in my experience. We all know about strep and its list of issues it can cause in the body. Mycoplasma Pneumonia is different because... Continue Reading →
