Reliving

TW: this will not be a positive post..and that’s okay sometimes. As I go back over my manuscript to add more important detail and information, I find myself going back to those times: Relentless weeks of a child screaming at me that this is My Fault. The waking during the night in a panic, soaked... Continue Reading →

In the Blink of an Eye, Literally

The first story submission from Kristin: On June 26 at 1:00 p.m., our lives changed in the blink of an eye, literally. It was that sudden, which later would be the key to where we are now. That morning Judd woke up his usual self, pumped for his first baseball tournament. He played ball at... Continue Reading →

Caregiver burden

It's not just you. When I first read about the Caregiver Burden Index in relation to PANDAS/PANS families, I was relieved. I harbored a lot of guilt inside feeling the way I did, the heavy blanket of depression and apathy that I started to pull over me after years into the fight. The 'score' is... Continue Reading →

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