Screams of rage. Dilated pupils. Night terrors. Hallucinations. Holes in walls. Anxiety. Those are just some of the symptoms we witnessed as our son fell off the ledge of normal childhood and into the pits of PANS. He had a perfect storm the week before: walking pneumonia while double vaccinated with two combo shots on... Continue Reading →
Daily writing promptWhat’s something most people don’t understand?View all responses There's a lot that people don't understand about PANDAS and PANS in general, but there are complexities around parenting these kids (and others with similar and overlapping qualities/disorders/illnesses) that others just don't quite understand. There is an inability to be carefree, to let your hair... Continue Reading →
In our long journey, I have experimented with many things in the effort to heal my child. I tried things I never thought I would have considered, and for the most part, they worked out great. Many of those things are still in my cabinet to be used to this day. *Before going further, please... Continue Reading →
I was recently reminded that while dealing with this disorder, you are never 'cured'. You are in remission, healthy now, or stable. This was exemplified by a recent minor flare after a 3-year streak. Support looks differently from family to family, depending on their triggers, severity, resources and more. For us, immediate support looked like... Continue Reading →
The previous post touched on some of the parenting changes that helped move our dynamic into a slightly better place while stuck in flares before PANS completely wiped out our family. If you don't know, we experienced more of a snowball effect and things slowly got worse until we were just barely at crisis levels... Continue Reading →
