Daily writing promptWhat’s something most people don’t understand?View all responses There's a lot that people don't understand about PANDAS and PANS in general, but there are complexities around parenting these kids (and others with similar and overlapping qualities/disorders/illnesses) that others just don't quite understand. There is an inability to be carefree, to let your hair... Continue Reading →
In our long journey, I have experimented with many things in the effort to heal my child. I tried things I never thought I would have considered, and for the most part, they worked out great. Many of those things are still in my cabinet to be used to this day. *Before going further, please... Continue Reading →
I was recently reminded that while dealing with this disorder, you are never 'cured'. You are in remission, healthy now, or stable. This was exemplified by a recent minor flare after a 3-year streak. Support looks differently from family to family, depending on their triggers, severity, resources and more. For us, immediate support looked like... Continue Reading →
The previous post touched on some of the parenting changes that helped move our dynamic into a slightly better place while stuck in flares before PANS completely wiped out our family. If you don't know, we experienced more of a snowball effect and things slowly got worse until we were just barely at crisis levels... Continue Reading →
Back when our PANDAS was a mystery, an unknown infiltration into my child's brain, changing our lives slowly and surely, we were told to alter our parenting practices. While I hated this advice, it did cause me to take a step back and think about how I can help manage some of the difficulties we... Continue Reading →
