When my daughter handed me the urine sample cup and it was pure black, I panicked. There was nothing in my brain, it all emptied. We were in the pediatrician's office for the second time after she'd had some kind of illness that involved minor vomiting and a two-day fever but 2 weeks later, could... Continue Reading →
I'm not a doctor or a scientist. I'm just a parent who, after having my concerns ignored by medical professionals for over five years, went on a pursuit of knowledge myself. I will always try to steer clear of information that is not available from reliable and trustworthy sources. I will always do my best... Continue Reading →
It's not just you. When I first read about the Caregiver Burden Index in relation to PANDAS/PANS families, I was relieved. I harbored a lot of guilt inside feeling the way I did, the heavy blanket of depression and apathy that I started to pull over me after years into the fight. The 'score' is... Continue Reading →
