TW: this will not be a positive post..and that’s okay sometimes. As I go back over my manuscript to add more important detail and information, I find myself going back to those times: Relentless weeks of a child screaming at me that this is My Fault. The waking during the night in a panic, soaked... Continue Reading →
Daily writing promptWhat’s something most people don’t understand?View all responses There's a lot that people don't understand about PANDAS and PANS in general, but there are complexities around parenting these kids (and others with similar and overlapping qualities/disorders/illnesses) that others just don't quite understand. There is an inability to be carefree, to let your hair... Continue Reading →
The previous post touched on some of the parenting changes that helped move our dynamic into a slightly better place while stuck in flares before PANS completely wiped out our family. If you don't know, we experienced more of a snowball effect and things slowly got worse until we were just barely at crisis levels... Continue Reading →
Back when our PANDAS was a mystery, an unknown infiltration into my child's brain, changing our lives slowly and surely, we were told to alter our parenting practices. While I hated this advice, it did cause me to take a step back and think about how I can help manage some of the difficulties we... Continue Reading →
I started journaling when my trenches were just dips in the mud. It started as my son's food diary and notes of medications, doctor visits and symptoms so I could be prepared. I had no idea how important those things were until I needed them as our journey got more complex and heavier. As things... Continue Reading →
