I’m just a mom

I'm not a doctor or a scientist. I'm just a parent who, after having my concerns ignored by medical professionals for over five years, went on a pursuit of knowledge myself. I will always try to steer clear of information that is not available from reliable and trustworthy sources. I will always do my best... Continue Reading →

Caregiver burden

It's not just you. When I first read about the Caregiver Burden Index in relation to PANDAS/PANS families, I was relieved. I harbored a lot of guilt inside feeling the way I did, the heavy blanket of depression and apathy that I started to pull over me after years into the fight. The 'score' is... Continue Reading →

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