It’s almost that time…There’s nothing better than showing up to Christmas dinner only to find that your cousin’s daughter has the flu. Family gatherings are sometimes the best parts of the year - and often, it’s the only time you see certain family members. Thats why setting boundaries can be difficult. When you or your... Continue Reading →
The Community You Never Wanted
I met another PANDAS mom last week. I was wearing an old awareness shirt that had my son's name listed on the back along with hundreds of other kids suffering. She asked about it and when I confirmed I was parenting a P/P child, I saw her physically untense a little. She knew I could... Continue Reading →
Struggles For Diagnosis
Screams of rage. Dilated pupils. Night terrors. Hallucinations. Holes in walls. Anxiety. Those are just some of the symptoms we witnessed as our son fell off the ledge of normal childhood and into the pits of PANS. He had a perfect storm the week before: walking pneumonia while double vaccinated with two combo shots on... Continue Reading →
Regression in Academic Skills
One of the biggest challenges in PANDAS/PANS can be the skill regression. Kids who could once spell and do addition suddenly forget. In our case, around 4th grade, he suddenly started writing letters and numbers backwards, misspelling simple words he could write perfectly fine before, and completely losing the ability to do basic math. I... Continue Reading →
The Best Gifts
Daily writing promptShare one of the best gifts you've ever received.View all responses The best gift given to me would be forgiveness. I call it a gift because it isn't freely given. You can ask for it, but you won't always receive it. It often needs to be earned and worked towards. Forgiveness is something... Continue Reading →

