We just returned from a week-long vacation, traveling in our RV to Texas to witness the eclipse in totality. We used to be unable to ride in a vehicle together, much less spend days together in a small space. I realized a few hours into the trip that I had taken something as simple as... Continue Reading →
Screams of rage. Dilated pupils. Night terrors. Hallucinations. Holes in walls. Anxiety. Those are just some of the symptoms we witnessed as our son fell off the ledge of normal childhood and into the pits of PANS. He had a perfect storm the week before: walking pneumonia while double vaccinated with two combo shots on... Continue Reading →
One of the biggest challenges in PANDAS/PANS can be the skill regression. Kids who could once spell and do addition suddenly forget. In our case, around 4th grade, he suddenly started writing letters and numbers backwards, misspelling simple words he could write perfectly fine before, and completely losing the ability to do basic math. I... Continue Reading →
Daily writing promptWhat’s something most people don’t understand?View all responses There's a lot that people don't understand about PANDAS and PANS in general, but there are complexities around parenting these kids (and others with similar and overlapping qualities/disorders/illnesses) that others just don't quite understand. There is an inability to be carefree, to let your hair... Continue Reading →
In our long journey, I have experimented with many things in the effort to heal my child. I tried things I never thought I would have considered, and for the most part, they worked out great. Many of those things are still in my cabinet to be used to this day. *Before going further, please... Continue Reading →
