I was recently reminded that while dealing with this disorder, you are never 'cured'. You are in remission, healthy now, or stable. This was exemplified by a recent minor flare after a 3-year streak. Support looks differently from family to family, depending on their triggers, severity, resources and more. For us, immediate support looked like... Continue Reading →
The previous post touched on some of the parenting changes that helped move our dynamic into a slightly better place while stuck in flares before PANS completely wiped out our family. If you don't know, we experienced more of a snowball effect and things slowly got worse until we were just barely at crisis levels... Continue Reading →
Back when our PANDAS was a mystery, an unknown infiltration into my child's brain, changing our lives slowly and surely, we were told to alter our parenting practices. While I hated this advice, it did cause me to take a step back and think about how I can help manage some of the difficulties we... Continue Reading →
Daily writing promptShare one of the best gifts you've ever received.View all responses The best gift given to me would be forgiveness. I call it a gift because it isn't freely given. You can ask for it, but you won't always receive it. It often needs to be earned and worked towards. Forgiveness is something... Continue Reading →
The first story submission from Kristin: On June 26 at 1:00 p.m., our lives changed in the blink of an eye, literally. It was that sudden, which later would be the key to where we are now. That morning Judd woke up his usual self, pumped for his first baseball tournament. He played ball at... Continue Reading →
